Last night, I came across the most extraordinary article.
It came from the blog of Christine Miserandino and it is the best explanation I've ever read of the sort of lives us sickies live.
I also think she writes beautifully and there are lots of bits and pieces at this site worth a read.
If you are one of my sick or disabled readers, you might even have come across it already - I don't know how I could possibly have missed it until now. There are now thousands of "spoonies" and I've already used the phrase "running out of spoons" about 4 times today.
Hopefully, it might help some of us to finally be able to put into words how different our lives are.