Sunday, 6 March 2011

Food Heaven? Or Food Hell?

It's Sunday, the sun is shining and an English citizen's DNA demands fried food.

Hats and mittens duly found, the boys and I took my nephew to Crescent Road Cafe. (Home of Zek, the genius food alchemist from Xmas) We wandered down the road in the early spring sunshine, chatting and singing "Sunny Side of the Street"

I ordered "Yorkshire Salad" and persuaded my nephew to have the same. A heavenly hash of crispy bites of mace-spiked black pudding, perfect fried potatoes, caramelised onion and thick cut bacon chunks. With tea, surely this is the most therapeutic sustenance known to man?

Well, no, not if you have Crohn's. Normally I have to drive there, even though it's only a 5 minute walk away. Normally, I order the very same dish and am lucky to manage a few mouthfuls before the niggle starts.  As I plough on, the niggle becomes an ache and the ache becomes a pain and the pain becomes a writhe. Normally, I leave at least half on the plate and spend the rest of the day repenting at leisure, wondering why on earth I thought fried food was a good idea.

Not today though. Not in the "Look at me Papa, I'm a real boy" stage. No. Today, I happily munched and nommed my way through the lot. I savoured every mouthful, every shred of crispy onion, every puff of fluffy potato, every last plate scraping. This is a wonder, a miracle. Can you even begin to imagine being so grateful for a simple breakfast?

It's a chore I know, but my mission (which I have gratefully accepted) is to put on weight. To recover from the bony and threatening 6 stone malnutrition of Xmas. I must eat regularly - every two hours or so. I must not waste time or energy on piffling salads or low fat light-bites. No, I must search out calories wherever they may lurk and cram as many in during these few short months of "wellness" that I can. Donuts, cakes, hot chocolate with mountains of cream, crisps, pies, pastries. It's a dirty job but someone has to do it.

Before you hate me too much though, remember, in a few weeks, I will start to leave a few mouthfuls, shifting uncomfortably in my seat. A week or two after that it will be half the meal. In a year or so, I will almost certainly be drinking synthetic meal shakes and craving a Yorkshire Salad more than air.

Here's a thought. Tonight, make your favourite food for dinner. Go to town, push the boat out. Buy the best ingredients you can find, get all the trimmings. As you eat it, taste every mouthful. Really chew. Notice the spices, savour every herb. choose a good wine to go with it and sip, don't glug.

Can you even imagine a world where something so delightful, so pleasurable, so sociable does you harm? Real physical damage? I guarantee you it will be the best meal you eat all month. We only ever really appreciate the pleasures of our lives when we risk losing them.

Saturday, 5 March 2011

Weekly Roundup

"It won't be cuts that bring this government down, it will be incompetence" Me, since June 2010

I may have mentioned this once or twice before ;) Last week I concluded that they couldn't organise a sell off in a forest and this week things got worse.

Poor Mr Clegg, trying to enjoy a nice skiing holiday, got called back over the inconvenient little spat taking place in Libya. He had apparently "forgotten" he was in charge of the country.

Sipping from a mug marked “Deputy Prime Minister,” he said: “Yeah, I suppose I am. I forgot about that.


Meanwhile, though Nick had no trouble getting to his snowy retreat, Wee-Willie Hague had awful trouble getting a few people on a plane or boat himself. Stranded UK citizens were allegedly amongst the last to get out of Libya. Last out of recession,  last out of Libya, seems to be a pattern emerging. Things got so bad, "Honest Dave" Cameron had to apologise. Rumour has it special voice coaches were required to overcome his natural  inability to show humility. 


Count Gideon Von Osborne wasn't skiing this week, but appeared to "lose" a speech. He was due to claim that : 


"everyone earning £35,000 a year or less will have a lower personal tax bill as a result of next month's budget"


Begging the question "Did our chancellor get the sums wrong? Obviously he's got them startlingly wrong on growth so far, so it's possible.


Despite promising that no active service personnel would be made redundant, the coalition decided that, erm, they all might be and told all 10,000 serving in Afghanistan that they may lose their jobs. Some by email which was awfully sensitive. Perhaps it was an attempt to be modern? "M8, U face chop. Best, Dave. Lol"
Ultimately it seems 17,000 or 1 in 10 jobs will be lost in the armed forces - a fact which seems not to be deterring Dave from rattling his sabre loudest over possible intervention in Libya. We won't have any aircraft to fly or pilots to fly them, but they're just details it seems. 


As solutions to our problems, Conservatives around the country have suggested banning people from feeding the homeless and selling off the National Blood Service. Coming soon : Sterilising the poor and harvesting organs. 


So, that was this week's roundup. I may not be able to do one next week as typing with my head in my hands is getting increasingly difficult. 





Friday, 4 March 2011

Warning! Stupid Sick People

Oh, Give me strength.

Research conducted by the BNF (British National Formulary) has found that the labels on medications are "too difficult for members of the public to understand."

Apparently phrases like "May cause Drowsiness" need to be replaced with "This medicine may make you sleepy" and "Avoid Alcohol" needs to now read "Do not drink Alcohol when taking this medicine"

Cue much re-writing of labels and leaflets, costing a fortune and achieving what exactly?

The last time I was discharged from hospital :

-My anti-emetic was prescribed as tablets instead of injections
-Another anti-emetic was dispensed in 25mg injections, but no-one told me I was only supposed to draw up a quarter of it and throw the rest away.
-I was only sent home with 38 pethidine injections despite it clearly saying 56 on the discharge request
-The pethidine injections were 50mg instead of my usual 100mg, meaning that I only had enough painkillers to last me until 3am on the Sunday morning after discharge, leaving me without until my surgery opened on the Monday and a new prescription could be arranged.
-The bottle of medazolam prescribed was missing altogether
-I was sent home with not one but two boxes of Tramadol - a painkiller I never take and which I am allergic to.
-I was sent home haemorrhaging because a blood thinning drug (Clexane) had been combined with an anti-emetic that caused bleeding. Despite trying to tell the staff for over 24 hours, no-one looked into it or asked if it had stopped before sending me home.

Recently, as part of the 20 Billion in "efficiency savings" the NHS are being ordered to make, my mother received a call from her doctor asking why she takes a more expensive antacid than the normal one prescribed. She explained that the cheaper alternative had given her an allergic reaction. (Something clearly detailed in her notes, had he read them.) Next, he mentioned that she'd had a TIA (mini stroke) "But I haven't?" She replied
"Do you know what a TIA is? He asked
"Yes, a Trans Ischemic Attack or mini stroke" she replied "I can assure you I've never had one."
"Oh! You must have been a receptionist!" Was his explanation for her knowing such a thing. Not a neurosurgeon or a physiotherapist, but a receptionist.

Here's an idea - why don't we stop treating patient's like idiots? After all, despite their assumptions we are able to decipher their endless mistakes and oversights in order to keep ourselves alive, so we might actually be capable of understanding the word drowsy!

Maybe - just maybe - it might improve things more if we stop asking harassed junior doctors to write up discharge meds when they've never met or treated the patient in question? Maybe, it might be a good idea to overhaul the system of ordering and dispensing pharmacy meds from hospital? While we're at it, that might have the accidental effect of ensuring it doesn't take all day long to get them up to a ward, freeing up beds for incoming patients? Maybe we should try really hard to actually prescribe the drugs the patient takes with the right doses and instructions?

Surely my suggestions would save a lot more lives than assuming that most patients have an IQ of 6?

Thursday, 3 March 2011

Whatever Happened to the Heroes?

THURSDAY, FEBRUARY 25, 2010

Protests Grow in Greece, Portugal and Spain


Three killed as Greek austerity protest turns violent

Egypt protests escalate in Cairo,
Suez and other cities
The Middle East in crisis: Tens of thousands 
protest in Yemen 
Chaotic scenes in London as 
student protests return
30th Nov 2010

Since the greatest recession for generations, we've seen Irish PM Brian Cowen outline an "essential" deal with the IMF, whilst Spanish Prime Minister Jose Rodriguez Zapatero (first elected 2004), Greek Prime Minister George Papandreou, (in government since 1981)  and Portugese Prime Minister Jose Socrates (First came to power in 2005) present grey, be-suited men to explain fiscal policy or austerity packages, tied with brown paper and string. 
First Mubarak (came to power 1981) , now Gaddafi (came to power 1969) refused calls to go, clinging doggedly to the old order. 
Berlusconi (first elected 1994) is still, well, Berlusconi - one could be forgiven for not realising there was any crisis at all other than the one constantly raging in his trousers. 

On Tuesday, Mervin King admitted he was "surprised people weren't more angry" with the bankers who caused the recession

Well Mr King, I think you just summed up the problem more astutely than you ever realised. People are angry. They're furious. Around the world, they are toppling leaders like nine pins. They are taking to their streets and refusing to go home. First Ben Ali in Tunisia, (came to power 1987) then Mubarak,  now Cowen have fallen. Gadaffi looks likely to be next.

Online, people are organising protests that speak for millions upon millions of people who are being asked to pay for the greed and incompetence of their political and business leaders. The problem isn't the people, it's the total failure of those in charge to realise - and address - a new order. 

Where are the heroes? Where are the charismatic new leaders with vision? 


The world is at a crossroads. The people can see solutions. The people know that radical changes need to happen, that the world must come together and think about things differently, yet at a time when the world is desperate for leaders who will stand with them, these establishment men, these long-term leaders still entrenched in their "Golden Age" mentality haven't realised that the world has changed so profoundly, it no longer needs yesterdays men; 20th Century men. 

To speak of revolution in the 90s seemed militant and unnecessary, yet in 2011, revolutions are taking place everywhere. Political leaders must shake off their fear of radical solutions because the world is leaving them behind. Opposition leaders no longer have the luxury of sticking to the centre ground like limpets, suggesting a penny less fiscal blah here and a year's more recovery blah there. The centre ground has gone, gobbled up by the credit crunch and the "squeezed middle" finds itself in exactly the same mess as the forgotten poor. The days of smug superiority, fostered by vote chasing politicians are no more. 

There needs to be change and its no longer just agitators or troublemakers calling for that change, it transcends class or creed. Egypt's uprising was as intellectual as it was universal, with doctors and lawyers and professors taking to the streets with cleaners and shopkeepers and mothers. Christian and Muslim, rich and poor - protest today means something entirely different to protest before the credit crunch. It has a validity not seen for decades.

There is a simple, stark choice facing us all. Status Quo or Innovation? More corruption, more control, more of the same or real change? Unless our opposition leaders move into this new reality, this chaotic violence engulfing the world will only grow. Now is not the time to be timid. 

Wednesday, 2 March 2011

Fathers for Justice

Not a title you might expect from me, but perhaps you'll forgive me for a deviation.

You see I'm furious, helpless and shocked by the rights (or rather lack of rights) a father has when a relationship breaks down. Effectively, if a woman decides that she no longer wants her ex partner to see his own children, there is absolutely nothing he can do about it. Nothing.

He can go to court, he can pay for the best barristers, he can show that he was - is - a good father. He can have been the child's stay at home carer, he can jump through any and every hoop a judge or ex cares to demand, but if the mother refuses to comply or co-operate, he can find he has totally lost the most precious thing in his life.

Life seems to have decided I need to know about this.

I've watched not one, not two not three, not four but FIVE good men slowly torn apart by vindictive women who decided to use their children as weapons. Yes, vindctive. Did these men beat their kids? Were they suspected of horrific abuse? Were they addicts or bullies? No. All 5 were good enough men but they were excellent fathers. That's the important thing - excellent fathers. They made birthday cakes, built slides and trampolines, took time off for parent's evenings and first nativities. They were equal parents, equal carers and vitally, equal sources of love.

One was a wealthy man. He spent 10s of thousands on countless hearings over many years. In the end the judge told him, (after his ex had simply refused to comply with ruling after ruling) that there was nothing more he could do. "I can't put her in prison, she's a mother" he concluded. A year or two later, my friend threw a purple flour bomb at Tony Blair in parliament to protest with Fathers for Justice. He ended up in a cell on a terrorism charge before you could say "injustice." He's only a father you see, no problem at all locking him up. He hasn't seen his daughter for years and won't now unless she decides to find him. If she does, he will have a scrap-book of every picture of them having fun, every news article about his fight to see her, every letter, and every plea he ever wrote.

The others weren't so financially free, but it made no difference anyway. They still had to find the money to fight in court, they still often won visiting rights or joint custody but they still ultimately  lost their babies. My brother hasn't seen his children for over ten years. Another friend moved to Australia to follow an ex who had gone to such lengths to deny him access, that she refused to even give him contact details for his own daughters. Her mother sent my friend anonymous and sinister postcards, intimidating him into giving up, all of which and much more was proven in court. His new partner got cancer and he was torn apart knowing that she was back in the UK, on the other side of the world, having chemo and radiotherapy, but he determinedly stayed on in a small flat, all alone, never allowed to see his daughters. He's been there for two years, fighting exactly the same pointless battles in the Australian courts as the others have fought in the UK. He has to come home soon, but before he leaves he wants to ensure that at the very least, if anything happens to his ex-wife, he will be the main carer for his own children by default. She won't even grant him this.

Now, yet another friend is facing the same nonsense. When he split with his wife, he moved just down the lane to live in a static home in a neighbouring field, just so that he could be nearby and help his family. Nonetheless, despite practically being able to see them if they play in their own garden, he only has access every second weekend and has to meet in a lay-by to collect his own children. She has moved out of the home they shared and refuses to give him any contact details apart from her mobile number. He now doesn't know where his own children live.

The thing that sickens me the most about this is that these women are hurting their own kids at least as much as they are hurting their ex-partners. If they think they've found the ultimate punishment, well they have. The trouble is, they are causing pain and damage to their own children that will never heal. Accompanied by an endless, poisonous drip-drip of distortion and contempt about the men they used to idolise, in the end the children start to doubt their own memories, they don't want to hurt their mummies or let them down, and slowly, slowly, they pull away from these men, often never to come back.

What a wicked, selfish, thing to do to your own babies.

Fatherhood has changed in the 21st century, and the law must start to recognise this. A mother has no more right to choose if a father sees his own children than a rejected lover has to demand that her partner comes back. Allowing one as revenge for the other is totally unforgivable.

Tuesday, 1 March 2011

Quick Campaign Request

Afternoon spoonie warriors!

The mighty 38 Degrees are asking for ideas on what their next campaign should be.

I have asked them to consider the cuts facing the sick and disabled. It is however, very difficult to get our point across with just a few words in a status. As ever, the brilliant Broken of Britain say it best - "Alone we whisper, together we shout"

Do add your own request. If ever a group of people needed a friend like 38 Degrees to fight with them, it's us.

The link is here on Facebook http://www.facebook.com/peoplepowerchange

or here on their website  http://www.38degrees.org.uk/what-next


The more of us try, the more chance we have. 


UPDATE : Here's a link to vote for this as an issue. PLEASE do vote xx 
http://38degrees.uservoice.com/forums/78585-campaign-suggestions/suggestions/1522515-a-campaign-to-stop-the-abolition-of-disability-liv

Shocking NHS Revelation

It has been brought to my attention, that as part of the NHS cost cutting measures, a leading London Gynaecologist has been told to discharge all of his patients and reassess their need to see him one by one.

This is yet another terrifying assault on the sick and disabled, which, if replicated around the country, would cause great distress and anxiety. The doctor himself is apologetic and dismayed that he needs to put his patients though this.

If you've ever fought long years for a diagnosis or needed to be referred on for more specialist care at a large city hospital outside of your own health authority, this shakes the very foundations of your care, the very covenant you hold with the NHS. Relationships are built up over many years with a good consultant and any threat to that can be like the threat of losing a partner.

Will patients be re-assessed on need or cost?
Will patients be re-assessed on need or on where they live?

**If you have experienced a similar process at your hospital or under any form of specialist care, please let me know in the comments below, or by contacting me on Facebook (Sue Marsh) or Twitter (@suey2y).


Finally, please make sure this reaches the widest possible audience by clicking on the Facebook or Twitter buttons below or at the top right of this article. Ask friends that you know receive specialist care. This must not become a UK wide process.