Sunday, 17 January 2016

And RIP Rhydian Fon James



How very sad to be writing two obituaries in a row. Two faces smiling out from this page together, the full stops to this blog.  The full stops to the work we did together. They are obituaries I always knew I would write. Both lived short, uncomfortable lives and both always knew they would.

Those of you who remember Broken of Britain, may not remember Rhydian. He was an economist, writer and political activist for Plaid Cymru http://www.theguardian.com/profile/rhydian-f-n-james
That's why I wanted to use the proof image above. Politics made Rhydian's heart race as it makes mine. I think he would have wanted me to use this picture.

In this picture, he looks capable, as he most certainly was. He looks passionate, which he was. And he looks political. Which he was. That he also looks disabled is incidental. I think he'd like that.

It was Rhydian who engaged the first politician to support sick and disabled people through the welfare reform bill 2010. He drafted the first early day motions (EDM) for Hywel Williams. I didn't know what an EDM was. He wrote clear, yet forensic pieces of journalism when the rest of us were still reeling at the headlines. He analysed the detail, picked at the flaws and fed constant ammunition to those banging drums and rallying troops online.

You might notice that none of Rhydian's articles mention that he had Friedreich's Ataxia. So perhaps I won't dwell on it here. Enough to say that following a life that made his heart race may not have been the most self-preserving choice. It is a degenerative nervous condition that slowly chips your life away. Rhydian knew that every day counted and chose to spend some of them as a warrior.

And maybe that's why Rhydian chose to campaign for others. Online, his condition was totally irrelvant. Online, his words spoke for themselves. Online, his unquestionable genius just was. There were many times over the years I found out what someone's condition was after months or years of knowing them and was utterly shocked. It taught me so much about the perceptions of disability and capability and how very wrong they usually were.

The people I met were hysterically funny, sharply cynical, searingly clever and focused on something more than the everyday. Their disabilities were irrelevant beyond the limitations they placed on their ability to produce the work they wanted to. Online, the world can be a level playing field, and I hope that gave Rhydian a sense of liberation for a while as it did me and so many others.










150 comments:

  1. Very sad news 😪😪😪

    ReplyDelete
  2. We can ill afford to lose the fighters in these times, but what's important is that the fight goes on inspired by such as Rhydian and others.

    ReplyDelete
  3. RIP and an honourable gent.
    how About you, keeping ok? I hope.

    ReplyDelete
    Replies
    1. She's thriving, as we all could on a 70k salary working for Maximus.

      Delete
  4. Older you get....mmmmmore degenerative.
    Perspective intuition as all get older someday? Maybe?

    Shining lights certain to stand ou! Many x x.

    ReplyDelete
  5. So sad. Rhydian was a great campaigner - he got me started on disability campaigning - he inspired so many of us and our future campaigns will be our tribute to him.

    ReplyDelete
  6. And Maximus would have passed him fit for work, well done traitor, enjoying the money?

    ReplyDelete
  7. Saw a recent picture of you a few days ago, whilst you were at your work. Maximus really has created a miracle. Perhaps a 70k salary is what all us scroungers need?

    ReplyDelete
  8. Your last paragraph says it all....

    'Their disabilities were irrelevant beyond the limitations they placed on their ability to produce the work they wanted to.'

    Way to go, Sue. Way to completely dismiss people's very serious problems as being just something that makes it a bit more difficult for them to work. Because that's what you become now isn't it? Just part of the system that sees everybody as someone who needs to be made to work regardless of the disability they have.

    Absolutely disgusting. I hope the breadcrumbs that Maximus throw to you have been worth selling out all of your friends and followers for.

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  11. Hi ya, the Friedreich ataxia link is not working
    https://www.ninds.nih.gov/Disorders/All-Disorders/Friedreichs-Ataxia-Information-Page
    May be a better link.

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