tag:blogger.com,1999:blog-4568034298343558962.post8495234480995185794..comments2024-03-28T09:16:33.241+00:00Comments on Diary of a Benefit Scrounger: What WILL I do?Sue Marshhttp://www.blogger.com/profile/14849801822216267250noreply@blogger.comBlogger72125tag:blogger.com,1999:blog-4568034298343558962.post-9864756453576299152012-02-26T22:31:36.181+00:002012-02-26T22:31:36.181+00:00That is for USA claimants Shelley we do not have a...That is for USA claimants Shelley we do not have any in the uk as far as i know having spoken to the law society ?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-7674354147455525192012-02-26T19:47:32.162+00:002012-02-26T19:47:32.162+00:00Hi Sue-
I feel your pain. It is so hard to focus o...Hi Sue-<br />I feel your pain. It is so hard to focus on getting better when you have so many things financially to worry about. Have you looked into the appeal process? I've used this site as a great resource: http://www.disabilitydenials.com/long-term-disability-denial.html# <br /><br />I hope this helps you an others. I'll be following your journey and thinking out you.Shelley Townsnoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-26755959422310696382012-02-22T23:39:03.141+00:002012-02-22T23:39:03.141+00:00Hi Sue,
Just in case I have missed anything.. Hav...Hi Sue,<br /><br />Just in case I have missed anything.. Have you set up somewhere we can get you the direct financial donations already offered other than via the Research Fund - Fighting Disability Cuts yet?. Something / Somewhere you know it's intended for you..and your families needs..at this time of crisis ??toggleukhttps://www.blogger.com/profile/05130663073835154615noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-620303662591383832012-02-21T19:40:10.160+00:002012-02-21T19:40:10.160+00:00Hugs Sue, I really hope that you can take up some ...Hugs Sue, I really hope that you can take up some of the offers of help given by such huge hearted people above, i am unable to offer such practical help but hope your hell is eased by the immense support voiced here. Sending healing thoughts and having been in the depths of health and debt hell myself and survived now with two beautiful grandchidren and a loving partner am looking forward to hearing that you and your family are in a better situation asap xxJenhttps://www.blogger.com/profile/05701939325800656370noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-53081454873204804232012-02-21T18:45:19.814+00:002012-02-21T18:45:19.814+00:00The hospital should be able to put your husband up...The hospital should be able to put your husband up for free?! <br />I'm so saddened by this and I work for the nhs. Makes me so angry.<br />But that doesn't help you though does it!!Thriving rebelhttps://www.blogger.com/profile/15821433165290048815noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-19846356923140974792012-02-21T15:48:26.835+00:002012-02-21T15:48:26.835+00:00me too, Sue has done so much for us, i want to don...me too, Sue has done so much for us, i want to donate to help her & her family specificallyingridhttps://www.blogger.com/profile/04266948658908979507noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-61884779223289194442012-02-21T13:21:32.465+00:002012-02-21T13:21:32.465+00:00Sue I think the the vast majority of us understand...Sue I think the the vast majority of us understand how much all this campaigning the report etc, costs and also all the work costs your health. I do urge you to take up the offer of help you can get from people who are near enough to you to do that. And donations that may help. Your campaigning is tireless and your positivity and hope has kept me going many a time when ive felt overwhelmed and extremely low by all the changes. People want to be able to help and support you so accept it! We all know what the govt is doing to us is morally wrong and it shouldnt be necessary for you to rely on the kindness of others. But being as that kindness is their and you need it at the moment - take it - it also helps us to feel that we are doing something positive (((Big Hugs))) n love n hoping that a hospital stay is not recquired, but if it is - it is xxxxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-65236035184245160872012-02-21T09:41:48.472+00:002012-02-21T09:41:48.472+00:00Hi Sue
Hoping to contact you this way, I have done...Hi Sue<br />Hoping to contact you this way, I have done an exhausting search for an email addy for you, which is probably staring me in the face.<br />I have a story I wish to send you which may help us all about how useless ATOS really are!<br />jaxom@sky.comDavid Finchnoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-41445957955589571442012-02-21T09:39:08.492+00:002012-02-21T09:39:08.492+00:00So sorry to hear Sue.
Big hugs to you and your fam...So sorry to hear Sue.<br />Big hugs to you and your family.<br />We all know how it feels.David Finchnoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-51021168215900685732012-02-21T08:19:05.902+00:002012-02-21T08:19:05.902+00:00I've lost the comment now about media paying f...I've lost the comment now about media paying for interviews etc. so I'll reply here. <br /><br />I don't get paid for doing any, but they do cover travel expenses and if appropriate, a hotel overnight. <br /><br />I am a class A blagger - Kali is A++ - and wherever humanly possible I blagged expenses or a free lunch or snack. <br /><br />I DON'T get paid any expenses however from politicians, peers, organisations etc. Firstly, they never offered, secondly, I wouldn't take it if they did. <br /><br />I've been to London to welfare conferences, political conferences, to speak at Occupy, to go to parliament or to meet with people, loads of times. <br /><br />It's amazing how those things add up. <br /><br />Anyway, I'll try to outline it later in the post I've promised xxSue Marshhttps://www.blogger.com/profile/14849801822216267250noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-34205691605434507282012-02-21T01:06:12.664+00:002012-02-21T01:06:12.664+00:00Get well soon Sue, huge thanks for all that you ha...Get well soon Sue, huge thanks for all that you have done.<br /><br />Can we have a P.O. box address or other snail mail address to send you money?<br /><br />I don't trust the internet.Avenging_Angelnoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-79089977700082307642012-02-20T23:05:20.481+00:002012-02-20T23:05:20.481+00:00I took part in a documentary on the BBC a few year...I took part in a documentary on the BBC a few years back. You don't get anything from them for doing it. Not at that time anyway.diversejusticenoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-85962582636597991512012-02-20T21:48:11.133+00:002012-02-20T21:48:11.133+00:00Thing is, everyone else was talking about Mandator...Thing is, everyone else was talking about Mandatory Work Activity, NOT the Work Experience Programme (which is not mandatory and is for 16-24 year olds).<br /><br />The other Work Programme is for 25 year olds+ and IS Mandatory, complete with sanctions if you don't turn up to your shelf stacking in Tesco's.<br /><br />Mr Duncan Smith is being sneaky by talking about a -completely- different scheme to the one where disabled people will be Forced to Work or have their benefits docked.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-57650992898102879512012-02-20T21:35:27.364+00:002012-02-20T21:35:27.364+00:00Dear Sue,
I've never blogged before, but I wi...Dear Sue,<br /><br />I've never blogged before, but I wish to share a poem that I wrote. I wrote this poem the last time I went through the benefits system and the process dealing with Atos. It would be fair to say that it was "an extremely challenging scenario" that gave rise to immense anxieties and further ill-health and family stresses. Then there’s the aftermath and fallout where you enter a prolonged and lethargic period of recovery from the lengthy process, to work ever so hard to try and reach the base-line so difficult to achieve and balance that all sick and disabled people try to meet. <br /><br />Anyway… I’m waffling (maybe I will make a blogger yet!)<br /><br />I wrote this poem never knowing that someone like you would step forth from the shadows of fear and speak out for the voiceless disabled and the sick, especially coming from a vulnerable position like your own. The feat and courage you portray is nothing short of remarkable. I cried when I read your blog – please accept my warm and kind wishes. I appreciate your vulnerability and your humble efforts.<br /><br />Can you tell me – where would I send a cheque to?<br /><br />Yours truly<br />Brian <br /><br /><br />“Social Uncertainty”<br /><br />What is this uncertainty that I have to watch unfolding?<br />And why does this faith that I feel keep arising?<br />What is this hope that keeps me from crying?<br />And does this life really, keep me from dying?<br /><br />As sure as the hurt of limitation and pain<br />That keeps me in bondage to this life’s ego insane<br />The system once built to catch such as I<br />Can bring pressure and obstacles built high to the sky<br /><br />Oh why is there no one to fight for this cause?<br />Of importance to many, to survive if not lost<br />It kicks holes in security and stability for we<br />Leaving us vulnerable, in isolation, all alone and at sea<br /><br />If it were not for a refuge, and a foundation<br />To live out these days, without too much trepidation<br />I am tempted to surely walk out on this delusion<br />And exit this world and all its illusion<br /><br />Instantly I can hear our modern world cry<br />It can’t be that bad<br />Can It?<br />Why?Brian McAlorumnoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-48582272983363785442012-02-20T21:30:40.451+00:002012-02-20T21:30:40.451+00:00Dear Sue,
Does your childrens' school know wh...Dear Sue,<br /><br />Does your childrens' school know what you are going through? If they have a support worker attached that might provide a fast-track route to a care package.<br /><br />I have similar levels of incapacity as you, due to a 20 year history of severe ME/CFS, children aged 3 and 6, but no partner as their dad couldn't take the kind of stresses and strains you describe.<br /><br />In desperation during a relapse recently I wrote to my childrens' school about the struggle I was having just to get them to school.<br /><br />The response has been amazing. Teaching staff on hand to do school runs when I need, and a support worker attached to the school employed by org. called SHS who wants to fight for a care package for me when I gave up all hope of that years ago.<br /><br />Just thought it was worth a mention. My heart really goes out to you. And every day I want to thank you for your amazing work and your courage.Catherinenoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-17445140618424439782012-02-20T20:55:19.311+00:002012-02-20T20:55:19.311+00:00Get better soon Sue!!!!!!
Re:Workfare
By the wa...Get better soon Sue!!!!!!<br /><br />Re:Workfare <br /><br />By the way this Guardian article states those on Employment and Support Allowance can not be asked to go on the scheme.<br /><br />http://www.guardian.co.uk/society/2012/feb/20/work-experience-tesco-chris-grayling?newsfeed=trueAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-81509829123477950122012-02-20T19:13:35.035+00:002012-02-20T19:13:35.035+00:00Hi, Let me know as well where I can donate towards...Hi, Let me know as well where I can donate towards Sue and the Family. I too cannot give a lot but what I have I will share.<br /><br />Hope you feel a bit better soon Sue.<br /><br />ChrisAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-16874918750409576502012-02-20T18:56:03.664+00:002012-02-20T18:56:03.664+00:00Dear Sue,
Your blogs have been an inspiration to m...Dear Sue,<br />Your blogs have been an inspiration to me, and I'm sure to countless others. Please accept my heartfelt best wishes and prayers.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-30393744974005784892012-02-20T18:50:52.872+00:002012-02-20T18:50:52.872+00:00Sue hope you don't mind I sent your blog to Ed...Sue hope you don't mind I sent your blog to Ed Miliband and asked him to highlight the plight of everyone facing your situation. You have brought us all together and given us a voice. Now let us support you and your family. We are really "all in this together" and we want to help.e.rosenoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-61417898117948723392012-02-20T18:41:18.248+00:002012-02-20T18:41:18.248+00:00Sue, whereabouts do you live? I live near Croydon,...Sue, whereabouts do you live? I live near Croydon, and if I can help with transport or looking after kids etc, get in touch, please. I mean it. Inbox me on FB if you want, or get your hubby to do it, ok?<br /><br />You would accept the help if it were from a care worker, or paid for by public services, so please do not hesitate in accepting the offers from help from individuals who want to give back a little of the help you have given by the bucketful over the last few months. <br /><br />{{{DELICATE HUGS}}}Marie Lhttps://www.blogger.com/profile/11072063310020962638noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-47632665691206260172012-02-20T18:39:56.677+00:002012-02-20T18:39:56.677+00:00I do hope all goes well. I hate going to hospital ...I do hope all goes well. I hate going to hospital even when I'm feeling well as they always want to prod and poke at me anyhow. I'm also really surprised to read here that for the media interviews you did they didn't send a car or taxi for you as they usually do. It seems jolly unfair to me.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-27943727592798150352012-02-20T18:32:13.249+00:002012-02-20T18:32:13.249+00:00on the funding question, I agree with all the othe...on the funding question, I agree with all the others who've said we'll try and contribute. Just say if any other arrangement's needed than the current fighting fund set-up. Sue, this is appalling, both on your own personal level and how it impacts on your family, but also because it illustrates EXACTLY the huge human impact of the wretched WRB. Thousands of real people, thousands of real lives. Shame, shame on all those MP's and Lords who support this legislation.<br /><br />In 1999, the following was said:<br /><br />"I am proud that we stand today on our previous record, which is that the disabled, far from being a soft target and an easy touch for the government, are a group of vulnerable people who should be the last people to be disadvantaged when changes are made to our welfare and benefits system"....<br />Quentin Davis MP, Conservative spokesman for social security, when Labour were trying to make disability benefit cuts, and were opposed by the Tories and LibDems! (quoted by Sonia Poulson in her brilliant article in Mail Online 1/2/12).<br /><br />Words are so inadequate and don't help your practical situation,Sue, but may I say take care, rest, and enormous thanks and good wishes.Findlownoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-87773787089526774112012-02-20T18:18:16.144+00:002012-02-20T18:18:16.144+00:00Sue,
We live in Cambridge and would very gladly p...Sue,<br /><br />We live in Cambridge and would very gladly put Dave up if you're in hospital here and her wants to visit you. Depending on our son's movements -- it's his car and he needs it for work -- we might also be able to run him to and from the hospital too and save the car park fees.<br /><br />- nickNick Levinehttps://www.blogger.com/profile/02009504568287352682noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-41974254968280378992012-02-20T18:13:12.802+00:002012-02-20T18:13:12.802+00:00I agree. I would also donate. Might not be much. ...I agree. I would also donate. Might not be much. Maybe a fiver now and another in a couple of weeks. But if all Sparticii did, or even half of them, that would help. And we want to help. The comments here prove it. Sue you are such a magnificent person, a light in the darkness for so many of us. Allow us the priveledge of helping out. xxxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-65828941480751151852012-02-20T18:09:35.835+00:002012-02-20T18:09:35.835+00:00Minihippy, you are wonderful! It's so fantasti...Minihippy, you are wonderful! It's so fantastic to see people like you exist in this world! Much love to you and your wonderful parents xxxxxxxElindalhttp://www.thelotuspond.netnoreply@blogger.com