tag:blogger.com,1999:blog-4568034298343558962.post2143646045697872708..comments2024-03-28T09:16:33.241+00:00Comments on Diary of a Benefit Scrounger: Blink & you'll miss itSue Marshhttp://www.blogger.com/profile/14849801822216267250noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-4568034298343558962.post-67631418015597005702011-08-23T20:46:00.030+01:002011-08-23T20:46:00.030+01:00I'm trying to cultivate a drink problem so I c...I'm trying to cultivate a drink problem so I can:<br /><br />1. Feel better most of the time. <br /><br />2. All the mostest successful people had and sometime overcame a drink problem: Stephan King, Tommy Cooper, George W Bush, Tony Stark and Superman. <br /><br />Mason Dixon, Attempted Alcoholic.Mason Dixon, Autistichttps://www.blogger.com/profile/01799959037314750427noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-59192523764165371582011-08-23T12:26:36.279+01:002011-08-23T12:26:36.279+01:00We're human. And so we find things to moan abo...We're human. And so we find things to moan about. Every so often I would have a steroid infusion and also get a "holiday" from my illness. Before the days it had made irreparable damage, I was almost symptom free. But the euphoria of being well never lasted. After some time had passed I would suddenly find myself being miserable about something quite mundane. For instance I might moan about having got wet in the rain on the way to work whereas a few weeks ago I would be laughing my way there, very simply thoroughly happy that I could go at all.<br /><br />I would have to give myself a big kick up the butt and remember how precious a gift I had been given and to make the most of it before the inevitable return of the bad days.<br /><br />I don't know why, but it has been my observation that we are not made to be continually really happy. We just can't maintain that state. I think it takes work and maybe having had a taste of difficult times.<br /><br />I hope you do stay well. But don't be surprised if you have a grumpy day or find yourself moaning about the gas bill a few months down the line. And don't be too hard on yourself if you do!Spoonydochttps://www.blogger.com/profile/05530660179706960529noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-55720906563275162142011-08-22T22:00:21.561+01:002011-08-22T22:00:21.561+01:00Beautifully written Sue! And may I say that as a ...Beautifully written Sue! And may I say that as a (relatively) well person, I entirely agree, and try to make sure that I'm joyful and thankful with each day despite the endless minor inconveniences and annoyances they may bring. They're nothing really compared to all the beauty and potential of the world.Stephen Wigmorehttps://www.blogger.com/profile/15604582974059809054noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-59890458187745058592011-08-22T19:01:26.917+01:002011-08-22T19:01:26.917+01:00Sue, Great news but keep those fingers crossed if ...Sue, Great news but keep those fingers crossed if possible. Its great to be pain free for a while and enjoy life but hopefully this will last for quite a while, So enjoyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-7658397993752697262011-08-22T17:34:47.719+01:002011-08-22T17:34:47.719+01:00I know what you mean - I had an hour one time afte...I know what you mean - I had an hour one time after a treatment - unfortunately it wasnt repeated - I felt so light like I could fly! you dont realise even on a good day - how different a good day is to being totally pain free. xxxxAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-68578310116436292282011-08-22T13:25:18.337+01:002011-08-22T13:25:18.337+01:00Oh yes. For me it's only the occasional day, a...Oh yes. For me it's only the occasional day, and it's *wonderful*. But then in the days after, it hits me that that one wonderful day is what it should be like all the time, what my life could be. It's very hard.Jodinoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-12883863298147975232011-08-22T11:20:47.627+01:002011-08-22T11:20:47.627+01:00I would so love to have a time of freedom like tha...I would so love to have a time of freedom like that... (I wrote alot more but the page closed and i lost it :-( )Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-40252742352591416752011-08-22T10:49:56.943+01:002011-08-22T10:49:56.943+01:00Oh how wonderful to be given a "holiday"...Oh how wonderful to be given a "holiday" from the pain and exhaustion. No wonder you felt giddy with joy. I really hope that it lasts a little while longer this time. I feel a little bit that way after have adhesions removed, the only trouble is the chronic pain doesn't go anywhere, it's just I can push through the pain without worrying too much about the consequences the way I do when my bowel is in knots. I'm relishing my own version of a "holiday" right now as I wait for my adhesions to grow back and the cycle to start again. I keep thinking "maybe this time the cycle won't start again and I'll just have the chronic pain to deal with, won't that be wonderful". Oh the things we wish for when we aren't well and haven't been for a long time.Chrissyhttps://www.blogger.com/profile/13254578516714017969noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-86375991862367750172011-08-22T09:14:17.898+01:002011-08-22T09:14:17.898+01:00How beautiful. While our conditions are miles apa...How beautiful. While our conditions are miles apart, I recognise the feeling of "normality" as feeling like being on some kind of illegal drug. It's a total high. May you have the best of luck in stumbling into more such episodes in the future.<br /><br />Also I'd just like to say that "adalimumab" sounds exactly like a country from Gulliver's Travels.Jannoreply@blogger.com