tag:blogger.com,1999:blog-4568034298343558962.post7247994501962681933..comments2024-03-28T09:16:33.241+00:00Comments on Diary of a Benefit Scrounger: DoctorsSue Marshhttp://www.blogger.com/profile/14849801822216267250noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-4568034298343558962.post-81003874015889560672023-12-23T11:14:29.695+00:002023-12-23T11:14:29.695+00:00Discounts by 66girls are a way to affordable, tren...Discounts by 66girls are a way to affordable, trending, and chic clothes and accessories. In this online store, there are various types of stylish clothes; from casual wear to fashionable attires that cater for the different tastes and preferences of people. This is a great opportunity to take advantage of <a href="https://www.ritecoupons.com/stores/66girls-discount-coupon-codes.html" rel="nofollow">66girls discount</a> and explore a wide range of clothing items such as tops, dresses, skirts, outerwear, and accessories available at cheaper rates. 66girls is all about keeping up with the latest fashion trends so that customers don’t miss out on anything because they think it’s too expensive.Hudsonchrishttps://www.blogger.com/profile/08904306679588080132noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-42898837515403613322010-11-14T17:04:53.331+00:002010-11-14T17:04:53.331+00:00Yes, sadly, this is my experience too. My ME/CFS p...Yes, sadly, this is my experience too. My ME/CFS probably originates from when I started to get recurrent bouts of tonsillitis as a kid in 1968 (although I don't rule out an inherited susceptibility). In 1973 I had Glandular Fever and never fully recovered. I told the GP then that I was not feeling better, but he didn't believe me and that marks the start of my career with health services (both here and in Spain) of not being believed, getting fobbed off, refused medication, etc., ad nauseam. My parents took the attitude that, if "the experts" say there is nothing wrong with me, there is nothing wrong. I've gone on to develop IBS, MCS, fibromyalgia and a host of overlapping problems - and depression, which is hardly a surprise. I finally got a diagnosis in 2008 (40 years has to be some sort of record), but I'm still fighting for adequate treatment and medication.Pamela Stockshttps://www.blogger.com/profile/03355260804155394484noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-6956763587945182010-11-13T21:21:54.224+00:002010-11-13T21:21:54.224+00:00Sue - I couldn't respond yesterday when I read...Sue - I couldn't respond yesterday when I read this... it just makes me want to weep. <br /><br />I read it to each of my daughters and they felt the same. You have described our repeated experiences over the last 21y.<br /><br />Your poem sums up so many times that they have waited in the middle of the night in pain, only to be told that there is nothing physically wrong.<br /><br />Actually, I'm not sure whether I want to weep or KILL on all your behalves!<br /><br />Syzygy Sue xSyzygyhttps://www.blogger.com/profile/15033334461020443772noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-63005904506000051522010-11-12T20:50:02.991+00:002010-11-12T20:50:02.991+00:00Oh, I so much recognise what happened to me with t...Oh, I so much recognise what happened to me with this. I knew I had problems. I knew there was something wrong. Because I was never ever ill. I was always the strong one, and then one day, little by little, it all started going wrong. <br />But I was given so much bad advice - and sometimes no advice at all (apart from 'lose weight').... and now I am ill, and seem to have to fight for everything that I used to take for granted.<br /><br />I do hope your stay in hospital is a good one.Yell in the Darkhttps://www.blogger.com/profile/01682222546711659561noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-86800615606507400602010-11-12T17:18:58.649+00:002010-11-12T17:18:58.649+00:00Oh Ken, you do make me laugh. You've been a re...Oh Ken, you do make me laugh. You've been a real rock of support for my blog, thanks.<br /><br />FNGN - Thanks for sharing your story. It amazes me that so many of us survive this far at all.Sue Marshhttps://www.blogger.com/profile/14849801822216267250noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-74275870584749341662010-11-12T17:10:05.796+00:002010-11-12T17:10:05.796+00:00Sue....I know it sounds a bit crass, bearing in mi...Sue....I know it sounds a bit crass, bearing in mind the subject matter, but I love reading your work. I mentioned sometime ago that I fought the NHS over their responsibility for my first born's hemiplegia, it took more than 5 yrs of trench warfare, before they were forced to withdraw their defence and pay up. I didn't do it for the money, I gave that to what then was called the Spastic's Society, now Scope, I did it because the arrogance and smugness of the perpetrators of the damage, those that you write so beautifully about, offended my sense of justice. <br />Anyway, I know you are rising above the bullsh*t and won't take any prisoners, so eat your tea and build up your strength. If I see a guy in a white coat driving a 4x4, I'll give him the finger on your behalf. :-)KENhttps://www.blogger.com/profile/14161100235389055056noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-1305617408844394902010-11-12T16:55:15.788+00:002010-11-12T16:55:15.788+00:00I've had symptoms of my condition at birth, bu...I've had symptoms of my condition at birth, but they all went ignored. Things started to get really quite difficult around puberty (my condition just happens to be made worse by estrogen and progesterone - all the more reason for people to cry 'neurotic woman' at me) and my doctors decided to brush it off as 'depression' and throw hundreds of different pills at me. *sigh*<br /><br />I've also been told it was stress, that everyone got like that sometimes, was told that (and I quote) 'everyone's different' when showing my GP serious deformities (fallen arches, knock knees, curved spine along with hyperextending joints and stretchy skin...)<br /><br />I once asked for a referral to OT and the GP laughed in my face saying 'it's not like you're DISABLED!' - yes, actually, Mr. GP, sir. I am. Just because you've not heard of my debilitating condition doesn't make it any less debilitating.<br /><br />When I was at school I was constantly told that I was lying and just trying to get out of school and my mother kept being told that I was doing it for attention and not to give in to me and my games. So she didn't.<br /><br />...Basically, what I'm trying to say is that I'm now far far far worse physically than I should be at my age, because I kept being forced to overwork my poor joints, and on TOP of that I have countless mental problems and anxiety that make my life even more hell that can pretty much all be traced back to doctors not believing me...Friendly Neighbourhood Grammar Nazihttps://www.blogger.com/profile/15639642571642518684noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-45930120797742606252010-11-12T15:48:37.067+00:002010-11-12T15:48:37.067+00:00OrganisedPauper - Thanks so much for backing up my...OrganisedPauper - Thanks so much for backing up my experiences. I hope lots of other people comment too, because this really is the normal way of things, not just particular to me.<br /><br />I sometimes wonder whether there are any conditions at all that doctors don't write off as "neurosis."Sue Marshhttps://www.blogger.com/profile/14849801822216267250noreply@blogger.comtag:blogger.com,1999:blog-4568034298343558962.post-66259557528128754802010-11-12T15:32:24.451+00:002010-11-12T15:32:24.451+00:00I initially had a GP diagnosis of Fibromyalgia, wh...I initially had a GP diagnosis of Fibromyalgia, which to most GPs seems to mean...neurotic woman..all in her head...should pull herslef together. Took me over 5 years to get a referral to a rheumatologist and a diagnosis of a type of inflammatory arthritis with secondary fibromyalgia. Later got added a big fat prolapsed disc and carpal tunnel.<br /><br />I met a woman a couple of weeks back and it also took her 5 yrs to get a diagnosis of rheumatoid arthritis. She too had the label..Fibromyalgia. Her arm was even stuck in one position and they ignored it. By the time she got a referral and an RA diagnosis she had permanent joint damage.<br /><br />A physio friend of mine said if she had a diagnosis of Fibromyalgia she'd hang herself. This is because it is a real disease eveidence of which can be detected in spinal fluid, but most GPs think it's just neurosis. It causes immense pain which is invisible and makes people feel like they are dragging their bodies through treacle on a daily basis.OrganisedPauperhttps://www.blogger.com/profile/07875446216000709242noreply@blogger.com